Where your money goes

We rely heavily on voluntary donations to support the services we are able to offer to families, children and young people with life-threatening conditions. 

All of our support is provided free of charge and we rely on voluntary donations for the majority of our income and need to raise over £6 million from fundraising and £5 million in income from our shops each year. 

Continued improvements in care means children and young people are living longer and with more complex medical conditions. There are currently more than 2,000 children and young people in our area living with a life-threatening condition, who may require an aspect of our service. This figure is growing rapidly. Public Health studies report this could be as high as 6,000 by 2025. Awareness and understanding of our services are also growing, meaning a higher proportion of that increasing figure will inevitably be seeking our care and support.

Careers may have to be put on hold, healthy brothers and sisters can feel left out and regular family activities and holidays can be rare. During all of this, families are going through a process of grieving.

Our care and support is tailored for the needs of all family members and delivered where the families wish – in their own home, at hospital, in the community or at one of three hospices in Ipswich, Milton and Norfolk. 

We currently care for 365 children and young people and 463 family members receiving face-to-face support.

Our family centred approach includes specialist nursing care, symptom management nursing, short breaks, wellbeing activities, therapies, counselling and volunteer services in the family home; all meeting the individual needs of the child, young person and whole family.

Together we can make a difference to the lives of families across East Anglia. We need fundraisers and volunteers to support us to keep our important services running for those who need us most.